In collaboration with the James Lind Alliance (JLA), the Paediatric Inpatient Research Network (PIRN) has completed the Paediatric Hospital Care Priority Setting Partnership (PSP). Executed from April 2020 to September 2021, this three-phased partnership brought together patients, parents, caregivers, and healthcare professionals to identify the top ten most important, unanswered research questions around the treatment and care of children in hospital.
Top 10 Priorities
To identify these priorities, the Paediatric Hospital Care PSP enlisted a patient-oriented research approach by engaging with patients (e.g. children and youth), caregivers and clinicians at each and every step in the priority-setting process, from contributing ideas drawn from lived experience, to making strategic decisions about the design and delivery of the research study.
With the overarching goal of effectively relaying the Top 10 patient-oriented research priorities to diverse audiences, project leads of the JLA PSP will oversee the creation and dissemination of various knowledge translation products. To make this work possible, the program has been granted funding by the Ontario Strategy for Patient-Oriented Research SUPPORT Unit’s (OSSU) EMPOWER (Engaging Multi-Stakeholders for Patient-Oriented Research Wider Effects & Reach) Awards competition.
Through this funding, project leads of the JLA PSP will continue to work collaboratively with youth, parents, caregivers and clinicians to create dynamic and unique patient-informed knowledge translation products, that will seek to inform directions of future research in paediatric hospital care.