Pediatric Hospital Care Priority Setting 
The Steering Group

The Canadian Paediatric Hospital Care Priority Setting Partnership will be overseen by a Steering Group, which includes clinicians (nurses, physicians) working with patients and parent/caregivers of children.

Katherine Cowan

Co-Chair of the Steering Group

Katherine Cowan is a Senior Adviser to the James Lind Alliance (JLA) and is co-chair of the Pediatric Hospital Care Priority Setting Partnership (PSP) Steering Group. She has been a key contributor to the development of the JLA method since 2008 and has facilitated around 40 PSPs internationally. Katherine is based in the UK.

Peter Gill

Co-Chair of the Steering Group

 Dr. Peter Gill is a Paediatrician at the Hospital for Sick Children and Department of Paediatrics, University of Toronto and an Associate Scientist at the SickKids Research Institute. His clinical practice focuses on the care of hospitalized children on the general paediatric inpatient unit, and he is co-leading the Canadian Pediatric Inpatient Research Network (PIRN).

Mairead Green

Young Person Representative

Mairead Green is a university student studying biomedical sciences in Ottawa. She is a former patient, and sits on CHEO’s Youth Forum, a patient advisory council at her local children’s hospital. Mairead is interested in research and joined the CHEO Research Institute’s family leader program, allowing her to contribute the patient voice to pediatric research.

 Michelle Quinlan

Parent Representative

Michelle is the chair of the Patient and Family Advisory Committee at CHEO-RI and leads the Family Leader Program .  She brings with her more than 15 years of experience as a business consultant and in project management, in addition to her in-depth experience as a parent involved with CHEO.

Her ten year old daughter Avery has been receiving medical care and therapy at CHEO since her birth and through the Care for Rare program Avery's rare condition was discovered.  Michelle has been a leader in increasing support for family engagement in all aspects of a patient's care. "I want to create the space and the relationships that will allow parents to be involved throughout the research process,"  says Michelle.

Francine Buchanan

Parent Representative

Francine Buchanan is a mom and primary caregiver to an amazing little boy who is thriving with complex medical needs. When she isn't watching or playing sports with her family, she is a Ph.D. student at the University of Toronto studying physician/patient communication. Francine's passion is increasing parent participation in a health research process, and she holds the position of Patient Engagement Co-ordinator at SickKids. 

Shelley Frapier

Parent Representative

I am an active Maman to three young children in Eastern Ontario. My youngest has a rare Genetic Epilepsy (SCN8A) and our journey has led me to research. I am an active Family Leader with CHEO-RI and a member of the CHEO-RI Patient Family Advisory Committee. I am also an Executive Volunteer for The Cute Syndrome Foundation.

Kim De Castris- Garcia

Parent Representative

Kim is the proud and happy mum to Marceline, who was unfortunately very ill over New Years, 2019. Luckily for their family, they lived very close to the wonderful helpers of Sick Kids, Toronto, who took the very best care of them. To thank their new friends, Kim is taking part in this PSP to make sure everyone who needs it gets the very best care possible, too

Ann Bayliss

Clinical Representative

Dr. Ann Bayliss is a paediatrician at Trillium Health Partners, a large University of Toronto affiliated community hospital in Mississauga, Ontario.  She has provided clinical care, teaching, served as program chief and been the site lead in several multicentre research studies.  She has served on regional task forces and been a member of the Provincial Council for Maternal Child Health since 2009, acting as co-chair of the Child and Youth Advisory Committee from 2012-16.

Sanjay Mahant

Clinical Representative

Sanjay Mahant is a Pediatrician at the Hospital for Sick Children and Department of Pediatrics, University of Toronto and an Associate Scientist at the SickKids Research Institute. His clinical practice and research focuses on the care of hospitalized children for children with both acute and chronic, complex conditions. He is co-leading the Canadian Inpatient Research Network (PIRN)

Karen Breen-Reid

Clinical Representative

Karen Breen-Reid is a Manager, Interprofessional Education with the Learning Institute at The Hospital for Sick Children in Toronto, ON. Karen has over 40 years’ experience in paediatrics and has been engaged in designing and delivering nursing and interprofessional education programs locally and globally. She was recently involved in development of the first Canadian Paediatric Nursing Standards.

Aubrey Sozer

Clinical Representative

Aubrey Sozer is the Interim Interprofessional Education Specialist for Paediatric Medicine, Respiratory Medicine & Infectious Diseases at the Hospital for Sick Children where she has worked since 2014. She completed her ungraduate studies at Johns Hopkins School of Nursing and is currently completing her Masters at the Universy of Toronto. 

Dana Arafeh

Project Coordinator

Dana is the project coordinator for the Pediatric Hospital Care PSP and the network manager for PIRN. Dana has a strong passion for patient engagement in research stemming from her personal experiences living with a rare disease and participate in a number of patient advisory groups. Dana has led multiple clinical projects including qualitaitve studies and clinical trials.

ABOUT US

PIRN is a new Canadian network developed  to generate evidence that improves care and outcomes for hospitalized children in general paediatric settings.

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Last Updated: March 2020 by the PIRN Team. Created with Wix.com