Paediatric Hospital Care FAQ

What is a James Lind Alliance (JLA) Priority Setting Partnership (PSP)?

James Lind Alliance (JLA) Priority Setting Partnerships (PSP) bring together patients, caregivers, family members, and healthcare professionals (such as doctors, and nurses) to identify important unanswered questions in specific topic areas, that they want research to answer. JLA PSPs help to ensure that there is a high level of patient engagement, as patients are involved in all steps of the process, as equal partners with caregivers and healthcare professionals.

Frequently asked questions (FAQ)

How does this survey work?


The survey will include three sections. In the first section, you will be asked to record your unanswered questions or any comments that you have about management or care of a patient on a general pediatric inpatient ward. In the second section, you will be asked a few questions to help us get to know you and ensure our survey is being represented by a range of participants from different backgrounds. Lastly, we will ask you to leave your contact details to keep you updated on the progress of the PSP.




Why is this survey important?


This survey is part of a Priority Setting Partnership. The survey will allow us to identify unanswered questions to ensure that we represent the perspectives/voices of clinicians (e.g. physicians, nurses, pharmacists, etc.), patients (children and youth) and caregivers (parents, family and caregivers). These questions will help to guide research organizations on where to prioritize limited funding, and they will help guide hospitals on where they can improve care for children and families.




Who should take part in this survey?


Your views are important because they help us better understand your unique perspectives and help us ensure that we focus on the right questions. We are interested in hearing from: Parents or caregivers of a child that has been admitted to a general pediatric inpatient unit or ward;

  • A child or young person (0-18 years) who was hospitalized on a general pediatric ward

  • A mother, father or caregiver to a child who was hospitalized on a general pediatric ward

  • A family member of a child or teen who was hospitalized on a general pediatric ward

  • A healthcare provider who takes care of children on a general pediatric ward




What do you mean by "Paediatric Hospital Care"?


Our priority setting study focuses on children cared for in a general pediatric inpatient unit, which could be located on a hospital ward in either a children’s hospital or a general community hospital. These children are cared for by a general pediatrician, and may include (but are not limited to):

  • Children with common conditions may include (but are not limited) to asthma, pneumonia, dehydration, fever, jaundice, or bronchiolitis.
  • Children with unexplained medical problems, that often need special tests or the involvement of sub-specialists
  • Children with medical complexity, such as children with multiple medical conditions or that require medical technology
  • Our study does not include other specialized areas in hospital, such as the pediatric intensive care unit (PICU), neonatal intensive care unit (NICU), medical subspecialty units (such as cancer units), psychiatric units, and surgical wards.
If you are unsure about what is or is not included in our study, please contact us for more information.




What will happen after I complete the survey?


After gathering your questions, our team will review the questions, categories them and create summary questions. We will then check to see if research already exists to answer some of the questions and illuminate any questions that have already been answered by researchers. The questions that are not already answered by research will go into a priority setting process in which patients, parents and healthcare professionals will take part. This will start with a shortlisting survey. The final list of questions will then be further refined at a workshop to determine the Top 10 priorities. Click here if you would like to find out more




What happens if I complete the survey and ask a question that already has been answered by researchers?


Please don’t worry about posing questions that have already been answered by researchers. Our team will collect your questions and determine whether the questions you pose have been answered by checking them against published research. We will publish the questions that do have answers already.




What will happen with all my information?


The questions you submit will be summarized for our reporting. Any survey submissions that we use will be anonymized. We will not include any personal health information or anything that will identify an individual, but please don’t put anything in here you don’t want anyone to know.




What will happen with the results?


The Pediatric Hospital Care PSP will publicize the top 10 questions by sharing them with our knowledge users and partners, such as researchers and research funders, and by publishing the results in an international open-access journal. We will keep the information you supply secure and we will not include any personal health information or contact information. All the results are shared on the James Lind Alliance website.





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PIRN is a new Canadian network developed  to generate evidence that improves care and outcomes for hospitalized children in general paediatric settings.

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Last Updated: March 2020 by the PIRN Team. Created with Wix.com